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Hereditary Hemorrhagic Telangiectasia (HHT) Center

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Grant

Contract Overview

Solicitation details, issuing organization, response deadlines, documents, and interested companies for this government contract opportunity.

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The Hereditary Hemorrhagic Telangiectasia (HHT) Center Program aims to reduce the morbidity and mortality associated with HHT by collaborating with clinical centers to improve access to and coordination of care for patients. It focuses on developing innovative approaches to assist healthcare providers in identifying and diagnosing HHT cases more effectively. A significant component of the program is the establishment of a de-identified, aggregated patient data registry designed to enhance understanding of this rare disorder and improve treatment outcomes. Managed by the Health Resources and Services Administration under the Department of Health and Human Services, this initiative encourages partnerships that foster better clinical management and research. The program is presented as a forecast opportunity, with contact available through Nordia Williams for further information. Although specific geographic or organizational details are not provided, the program underscores a national effort to address the complexities of HHT through data-driven strategies and enhanced clinical collaboration.

General Info

HHT Center Program improves diagnosis, care coordination, and data registry for better treatment outcomes.

Agency

Department Of Health And Human Services → Health Resources And Services Administration

NAICS

541715 - Research and Development in the Physical, Engineering, and Life Sciences (except Nanotechnology and Biotechnology) View NAICS

Place of Performance

Not specified

Set-Aside

NONE

Documents

(0)

No documents available

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Timeline

PostedMar 16

forecast

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Organization & Contact Information

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AgencyDepartment Of Health And Human Services → Health Resources And Services Administration

Contacts1 person available

OfficeUS

Organization / Agency

Department Of Health And Human Services → Health Resources And Services Administration

Office AddressUS

Contacts

Nordia Williams

contact@example.gov

+1 (555) 000-0000

Full Description

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The purpose of the Hereditary Hemorrhagic Telangiectasia (HHT) Center Program is to reduce illness and death related to HHT by partnering with clinical center to expand access and coordination of care; creating innovative strategies that support clinicians with identifying and diagnosing HHT cases; and developing a de-identified, aggregate patient data registry to better understand this rare disease and its treatment outcomes.

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