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PNS: Health Equity

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This project, funded under the Projects of National Significance within the Developmental Disabilities Assistance and Bill of Rights Act, aims to ensure health equity for individuals with intellectual and developmental disabilities and their families. Managed by the Administration for Community Living under the Department of Health and Human Services, the initiative focuses on promoting self-determination, independence, and full community integration. The primary goal is to create opportunities for these individuals to contribute to and participate in all aspects of community life while supporting national and state policies that reinforce their inclusion. Success will be measured through four key outcome areas: the implementation of policy changes to improve experiences for those with disabilities, the increase of leadership roles for individuals and their families, the expansion of knowledge regarding available support systems, and the creation and accessibility of data resources. These goals will be tracked via specific metrics, including the number of policy products created, the development of leadership training tools, the frequency of support-related trainings, and the dissemination of critical data resources.

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Empowers individuals with disabilities and families to drive policy change, leadership, and equitable access through lived-experience-based advocacy.

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AgencyDepartment Of Health And Human Services → Administration For Community Living
Contacts1 person available
OfficeUSA

Full Description

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A project will be funded under the Projects of National Significance (PNS) within the Developmental Disabilities Assistance and Bill of Rights Act. The project will focus on ensuring heath equity for individuals with intellectual and developmental disabilties and their families. Overall, the project will  "create opportunities for individuals with  developmental disabilities to directly and fully contribute to, and participate in, all facets of community life; and support the development of national and State policies that reinforce and promote, with the support of families, guardians, advocates, and communities, of individuals with developmental disabilities, the self-determination, independence, productivity, and integration and inclusion in all facets of community life of such individuals."
Projects funded under this announcement  will work toward one or more of the following performance measures:
Outcome Measure 1: Number of policies changed to improve the experience of people with ID/DD and their families  • Output Measure 1.1: Number of people who participated in policy advocacy activities  • Output Measure 1.2: Number of trainings about policy implemented  • Output Measure 1.3: Number of policy products created  • Output Measure 1.4: Number of times policy products were shared 
Outcome Measure 2: Number of people with ID/DD and their families who report new or increased leadership roles  • Output Measure 2.1: Number of tools and resources created related to leadership by people with I/DD and their families  • Output Measure 2.2: Number of tools and resources shared related to leadership by people with I/DD and their families  • Output Measure 2.3: Percent of people with I/DD and their families who reported learning new leadership skills  • Output Measure 2.4: Number of people with I/DD and their family members who train or mentor others as leaders or advocates 
Outcome Measure 3: Percent of people with ID/DD and their families who reported increased knowledge of supports needed to help them achieve the life they want  • Output Measure 3.1: Number of trainings held to increase knowledge of supports available to help achieve a desired life  • Output Measure 3.2: Number of resources created to increase knowledge of supports available to help individuals achieve the life they want  • Output Measure 3.3: Number of resources shared to increase knowledge of supports available to help individuals achieve the life they want 
Outcome Measure 4: Number of data resources accessed • Output Measure 4.1: Number of data resources created  • Output Measure 4.2: Number of activities to disseminate data 
 

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