Spinal Cord Injury (SCI) Model Systems National Data and Statistical Center
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The contract involves a grant under the Disability and Rehabilitation Research Project (DRRP) program aimed at enhancing services provided under the Rehabilitation Act for individuals with disabilities, particularly those with significant support needs. The project focuses on advancing medical rehabilitation for spinal cord injury (SCI) by creating a national longitudinal database that collects and assesses data from SCI Model Systems Centers. This Center will be responsible for ensuring the high quality of data collection, offering methodological support and training to participating centers, and facilitating collaborative research efforts to improve long-term outcomes for individuals living with SCI. The grant is administered by the Administration for Community Living, part of the Department of Health and Human Services, and spans a 60-month project period divided into five annual budget periods. The Center will serve as a hub for maintaining and monitoring the SCI data system, promoting rigorous scientific research, and improving the efficiency and accuracy of data-driven approaches in the field of spinal cord injury rehabilitation. The contract’s primary contact is Radha Holavanahalli, who can be reached by email or phone for further information.
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The purpose of NIDILRR's Disability and Rehabilitation Research Project (DRRP) grants is to improve the effectiveness of services authorized under the Rehabilitation Act by generating knowledge or developing methods, procedures, and rehabilitation technologies that advance a wide range of independent living and employment outcomes for individuals with disabilities, especially those with the greatest support needs. This Center will advance medical rehabilitation by increasing the rigor and efficiency of scientific efforts to longitudinally assess the experiences and outcomes of individuals with spinal cord injury (SCI). This Center must maintain the national longitudinal database for data submitted by each of the SCI Model Systems Centers. This Center must also ensure collection of high quality data, and support rigorous research by the Model Systems centers by monitoring data quality, providing training in the collection of SCI Model Systems data, providing methodological consultation to these centers, and other collaborative tasks. The grant will have a 60-month project period, with five 12-month budget periods.
