PNS: Protecting Rights and Preventing Abuse
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The contract under the Projects of National Significance initiative, titled PNS: Protecting Rights and Preventing Abuse, is funded through the Developmental Disabilities Assistance and Bill of Rights Act and aims to safeguard the rights of individuals with intellectual and developmental disabilities while preventing abuse. The project seeks to empower these individuals to fully engage in community life by fostering self-determination, independence, productivity, and inclusion. It will support the creation and advancement of national and state policies that are informed and driven by the voices of individuals with disabilities, their families, guardians, advocates, and communities. The overarching goal is to ensure that systems and policies reflect the needs and aspirations of people with developmental disabilities, enabling them to lead self-directed lives with meaningful support. The project is structured around four key outcome measures, each supported by specific output metrics to track progress. It will measure policy changes enacted to improve experiences for individuals and families, tracking advocacy participation, training delivery, and policy product development and distribution. It will assess the growth in leadership roles among individuals with disabilities and their families by evaluating tools created, shared, and learned, as well as the number of individuals mentoring others. The initiative will also evaluate increased knowledge of supports needed to achieve desired life outcomes through training and resource creation and dissemination. Additionally, it will expand access to data resources by creating and promoting new tools and activities that enhance understanding and use of relevant data. The project is managed by the Administration for Community Living under the U.S. Department of Health and Human Services, with Larissa Crossen as the point of contact for inquiries.
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Projects funded under this announcement will work toward one or more of the following performance measures:
Outcome Measure 1: Number of policies changed to improve the experience of people with ID/DD and their families • Output Measure 1.1: Number of people who participated in policy advocacy activities • Output Measure 1.2: Number of trainings about policy implemented • Output Measure 1.3: Number of policy products created • Output Measure 1.4: Number of times policy products were shared
Outcome Measure 2: Number of people with ID/DD and their families who report new or increased leadership roles • Output Measure 2.1: Number of tools and resources created related to leadership by people with I/DD and their families • Output Measure 2.2: Number of tools and resources shared related to leadership by people with I/DD and their families • Output Measure 2.3: Percent of people with I/DD and their families who reported learning new leadership skills • Output Measure 2.4: Number of people with I/DD and their family members who train or mentor others as leaders or advocates
Outcome Measure 3: Percent of people with ID/DD and their families who reported increased knowledge of supports needed to help them achieve the life they want • Output Measure 3.1: Number of trainings held to increase knowledge of supports available to help achieve a desired life • Output Measure 3.2: Number of resources created to increase knowledge of supports available to help individuals achieve the life they want • Output Measure 3.3: Number of resources shared to increase knowledge of supports available to help individuals achieve the life they want
Outcome Measure 4: Number of data resources accessed • Output Measure 4.1: Number of data resources created • Output Measure 4.2: Number of activities to disseminate data
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