National Death Index Linkage Access for NIH-Supported Investigators
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Established in January 2020, this agreement between the National Institutes of Health and the Centers for Disease Control National Center for Health Statistics allows NIH-supported investigators to link research databases with the National Death Index at no cost to the researcher. Eligible participants include extramural, contract, and intramural researchers who are actively funded by the NIH and serve as the owner or steward of the research data. While investigators must follow standard NDI application and approval procedures, they are limited to four linkage requests per calendar year, and any request exceeding 100,000 dollars requires prior NIH approval. The agreement outlines specific protocols for data sharing to maintain security and privacy. Fully deidentified research datasets may be shared without additional NDI approval. Potentially re-identifiable datasets may be shared without further approval only if they are accessed via a data enclave or managed by a data repository that adheres to the same constraints, provided the original application included approval for enclave sharing.
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