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Long-term health outcomes of people living with spina bifida

Active
CDC-RFA-DD-26-0222Grant

Contract Overview

Solicitation details, issuing organization, response deadlines, documents, and interested companies for this government contract opportunity.

AI Contract Overview

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Solicitation CDC-RFA-DD-26-0222, issued by the Centers for Disease Control and Prevention under the Department of Health and Human Services, focuses on improving long-term health outcomes for individuals with spina bifida. The initiative is divided into two primary components: Component A seeks 8 to 11 awardees to collect high-quality longitudinal data through the National Spina Bifida Patient Registry, while Component B seeks 6 to 8 awardees to implement and evaluate the UMPIRE iterative protocol. This protocol specifically targets the management of urinary and kidney systems in infants and young children with myelomeningocele. The overarching goal is to utilize data from specialty clinics to analyze health outcomes following interventions and to finalize the UMPIRE protocol for children aged 0 to 10 years. Interested parties must submit their responses by October 26, 2026. The project emphasizes the continuous collection and analysis of patient data to identify and implement opportunities for improving the standard of care for both pediatric and adult populations living with spina bifida.

General Info

CDC funding for spina bifida data collection and UMPIRE protocol implementation by 10/26/2026.

Agency

Department Of Health And Human Services → Centers For Disease Control - NcbdddView Agency

NAICS

541720 - Research and Development in the Social Sciences and HumanitiesView NAICS

Place of Performance

Not specified

Set-Aside

NONE

Documents

(1)

cdc-rfa-dd-26-0222_forPublication.pdf

PDF

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Timeline

PhaseSolicitation
Posted

Solicitation

Response Deadline

Submission deadline

Response Deadline

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Organization & Contact Information

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AgencyDepartment Of Health And Human Services → Centers For Disease Control - Ncbddd
Contacts1 person available
OfficeUSA
Organization / Agency
Department Of Health And Human Services → Centers For Disease Control - Ncbddd
View Agency Profile
Office AddressUSA
Contacts
Centers for Disease Control - NCBDDD
contact@example.gov
+1 (555) 000-0000

Full Description

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The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB

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