Projects of National Significance: Health Equity
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The Projects of National Significance focused on health equity aim to advance the rights and well-being of individuals with intellectual and developmental disabilities and their families by fostering full participation in community life and promoting policies that uphold self-determination, independence, and inclusion. These initiatives are anchored in the Developmental Disabilities Assistance and Bill of Rights Act and require active engagement of individuals with disabilities, families, advocates, and communities to shape systems and practices that support equitable access to health and social services. The projects are designed to empower individuals to lead change, advocate for policy improvements, and build community capacity to meet diverse needs. Performance is tracked through four core outcomes: changes in policies that enhance the experiences of people with disabilities and their families, increased leadership roles among individuals and family members, improved knowledge of available supports for achieving desired life outcomes, and greater access to and use of data resources. Each outcome is supported by specific measurable outputs, including the number of trainings conducted, tools and resources developed and shared, policy products created and disseminated, and data dissemination activities carried out. The initiative is administered by the Administration for Community Living under the U.S. Department of Health and Human Services, with Larissa Crossen serving as the point of contact for inquiries and guidance.
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