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GREGoRi Data Coordination and Outreach Center (U01, Clinical Trials Not Allowed)

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Contract Overview

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The National Human Genome Research Institute within the National Institutes of Health is issuing a Notice of Funding Opportunity under solicitation RFA-HG-27-011 to establish the GREGoRi Data Coordination and Outreach Center. This initiative is part of the Genomics Research to Elucidate the Genetics of Rare Disease Innovation program, which aims to transform rare disease diagnosis by advancing the tools, molecular technologies, and analytical methods used to identify causal genes and variants. The center will serve as the primary hub for the GREGoRi Research Program, managing and disseminating data, metadata, computational tools, and protocols to the wider research community. This opportunity utilizes the U01 activity code and specifically prohibits clinical trials. The solicitation was posted on June 6, 2025, with an open date of September 30, 2026, and an application deadline of October 30, 2026. The project falls under NAICS code 541715 and is managed by the Department of Health and Human Services. Interested applicants are encouraged to develop collaborations to meet the program's goals of accelerating a paradigm shift in the identification of rare genetic disorders.

General Info

NIH funding for GREGoRi Data Coordination and Outreach Center to advance rare disease diagnosis.

Agency

Department Of Health And Human Services → National Institutes Of Health

NAICS

541715 - Research and Development in the Physical, Engineering, and Life Sciences (except Nanotechnology and Biotechnology)

Place of Performance

Not specified

Set-Aside

NONE

Documents

0

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Organization & Contact Information

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AgencyDepartment Of Health And Human Services → National Institutes Of Health
Contacts1 person available
OfficeUSA
Organization / AgencyDepartment Of Health And Human Services → National Institutes Of Health
Office AddressUSA
Contacts
Lisa H. Chadwick National Human Genome Research Institute (NHGRI
contact@example.gov
+1 (555) 000-0000

Full Description

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The National Human Genome Research Institute (NHGRI) intends to promote a new initiative by publishing a Notice of Funding Opportunity (NOFO) to renew the Genomics Research to Elucidate the Genetics of Rare Disease (GREGoR) program. The renewal, called GREGoR: Innovation (GREGoRi), seeks to accelerate a paradigm shift in rare disease diagnosis by reimagining the tools, molecular technologies and analytical approaches used to identify the causal gene(s) and/or variant(s) underlying rare genetic disorders. The purpose of this Notice of Funding Opportunity is to establish the GREGoRi Data Coordination and Outreach Center. The Data Coordination and Outreach Center will act as the central point of coordination for the GREGoRi Research Program, and will be responsible for ensuring that the data, metadata, computational tools and other protocols developed as part of GREGoRi are made available to the broader research community.


This Notice is being provided to allow potential applicants sufficient time to develop meaningful collaborations and responsive projects. The NOFO is expected to be published in 2025 with an expected application due date in 2026. This NOFO will utilize the U01 activity code.

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