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Undiagnosed Diseases Network (UDN) Clinical and Data Coordinating Center

Active
Grant

Contract Overview

Solicitation details, issuing organization, response deadlines, documents, and interested companies for this government contract opportunity.

AI Contract Overview

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The National Institutes of Health, through NINDS, is forecasting a new phase of the Undiagnosed Diseases Network designed to improve diagnostic outcomes for individuals with previously undiagnosed diseases. This initiative focuses on integrating participant and provider engagement, research innovation, and the implementation of advanced diagnostic approaches. The network will comprise a variety of stakeholders, including the NIH Undiagnosed Diseases Program, clinical Networks of Diagnostic Excellence, and patient advocacy organizations. A central component of this effort is the establishment of a Clinical and Data Coordinating Center to provide operational oversight, data sharing, and regulatory management. The center will be responsible for participant recruitment, patient navigation, and the systematic re-evaluation of unsolved cases, while conducting implementation science to move diagnostic successes into mainstream medical care. Potential applicants are encouraged to prepare the necessary infrastructure, staffing, and partnerships to ensure operational readiness upon the eventual solicitation.

General Info

NIH NINDS forecasts a network to improve diagnostic outcomes for undiagnosed diseases.

Agency

Department Of Health And Human Services → National Institutes Of Health

NAICS

541715 - Research and Development in the Physical, Engineering, and Life Sciences (except Nanotechnology and Biotechnology)

Place of Performance

Not specified

Set-Aside

NONE

Documents

0

No documents available

Documents will appear here when they are available.

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Timeline

Posted

forecast

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Organization & Contact Information

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AgencyDepartment Of Health And Human Services → National Institutes Of Health
Contacts1 person available
OfficeUSA
Organization / AgencyDepartment Of Health And Human Services → National Institutes Of Health
Office AddressUSA
Contacts
UDN Program Staff
contact@example.gov

Full Description

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NINDS intends to support a new phase of the Undiagnosed Diseases Network (UDN) to advance diagnosis for individuals with previously undiagnosed diseases and undiagnosed diseases research. This phase would emphasize participant and family engagement, provider engagement, use of NIH and non-NIH resources, education, community engagement, research innovation and discovery, and broader implementation of advanced diagnostic approaches.

The Network is expected to include a Clinical and Data Coordinating Center (CDCC), clinical Networks of Diagnostic Excellence, the NIH Undiagnosed Diseases Program (UDP), a Diagnostic Research Innovation Center, individuals with lived experience, patient advocacy organizations, NIH, and other stakeholders.

NINDS anticipates supporting a CDCC to provide operational oversight and coordination for network activities including recruitment, participant support (e.g., patient navigation services, referring diagnosed participants to potential therapeutic options), protocol and regulatory management, data sharing, innovation in analytics, support for the systematic re-evaluation of unsolved UDN cases, collaboration, training, implementation science research to facilitate the transfer of successful UDN diagnostic approaches into mainstream medical care, and quality oversight and performance monitoring of the network. Applicants should demonstrate the infrastructure, staffing, governance, regulatory capacity, informatics systems, operational readiness, and stakeholder partnerships necessary to assume CDCC responsibilities with minimal start-up time following award.

Applications are not being solicited at this time. This Forecast is being published to provide potential applicants time to plan, develop meaningful collaborations, and responsive projects.

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